This blog is intended for my son, Roi or Biloi as fondly called by family and friends. "MY HEART'S JOURNEY" will keep track of his happiness and sufferings as he continue to survive despite denial of an open heart surgery, the only way to correct his heart defect due to doctor's fear of just losing him caused by his critical heart condition particularly his RV failure.
Tuesday, December 22, 2009
TOMY COLLECTIBLE CAR - PORCHE BOXSTER
Today, December 23, 2009 I received a text message from Biloi, pleading if I could possibly buy him a new Tomy collectible car # 91 (Porche Boxster). He said, this will serve as his christmas gift.
He really enjoys collectible cars. In fact, he has almost more than 20 at home. With our very tight financial condition, 1 Tomy car worth P150.00 is already expensive for me.
But how can I refuse his pleading knowing his heart condition? While I replied him that not this time because I have limited funds and besides I already bought him last day a different brand of collectible car worth P99.95 (paid out of the P100.00 christmas gift to him by Dir. Laceras), i have no choice but to go to Robinsons and buy his prescribed toy car. Well, this will be a surprise gift for him together with a 2009 car magazine. I can just imagine him hugging and thanking me for buying his Tomy car, which he always do whenever I bought him collectible cars.
As a mother, my children are always my priority especially Biloi. This Christmas I do really wish that Biloi will continue to survive and enjoy his life despite his condition.
MERRY CHRISTMAS TO ALL!
Monday, December 7, 2009
BETTER THAN YOUR BEST by Becky
BECKY is one of my friends...A FRIEND FOR ALL SEASONS OF MY LIFE!
When I was so down because of Biloi's condition, Becky was always there to give moral support. With her deep concern for my son, she helped me raised financial assistance by sending email to her friends. I understand that while others who received said email were not able to respond thru financial matter, I do believed that their prayers were more than enough for us to be grateful. Atty. Cora Alday, one of her best friend who was also a good friend of mine but unfortunately a breast cancer patient based in Canada has deposited more than P5,000.00 to my DBP account which really helped us defray our daily expenses while in Manila for my son's hospitalization. I owe a lifetime debt of gratitude to Cora and with God's blessings, she is recovering and even back to work again.
Below is Becky's email entitled "Better Than Your Best".
Better Than Your Best
Wednesday, 20 June, 2007 1:58 PM
From:
"Maria Rebecca Roldan-Dorado"
Message contains attachments:
Pictures of Biloi shown above
To my dear Friends,
Greetings for a BLESSED DAY. I hope you read through this letter which I consider so far to be the most important piece I have written in my life. I have not done this before. I just heard and read stories like this. And now I’m faced with a Christian responsibility of doing this and reaching out to you.
It's about Roi B. Dolot, fondly called “Biloi” by his family and friends. Biloi is a ten-year old boy born on February 15, 1997 at his hometown Tolosa, Leyte. But unlike other boys of his age, he can not do normal activities like running or just merely playing in the yard, for he gets easily tired. As you can see from his pictures below, he is suffering from a congenital heart problem (Severe Pulmonary Valve Stenosis) which needs to be operated on as soon as possible. The ailment was diagnosed when he was still 4 months old. However, due to financial constraints, he remains untreated todate. His fingertips are clubbing or in simple terms have blown to disproportionate size and dons a violet color as well as his lips. His skin, covering his frail body, had become so pale, a manifestation of inadequate oxygen getting into his system, as the hole in the heart’s aorta is so small that enough blood couldn't get through it. Recently, he was hospitalized due to hemoptysis, causing him to vomit blood from his heart. He is weaken by the simple fact that he couldn’t breathe normally. In the attached diagnosis made lately by a cardio-pediatrician from the Philippine Heart Center, an operation to correct the heart anatomy is urgently needed, costing P360,000.00, or roughly $8,000.00. The expenses is way beyond what the family could afford. The father, Rolando Dolot, is a lowly-paid policeman of the Philippine National Police . They have four children to raise in a far-flung barangay of Tolosa, Leyte. Both of them belong to poor families with no relatives to help them financially.
Biloi is a very intelligent pupil of Burak Elementary School, Tolosa, Leyte. A consistent honor pupil, he is supposed to be in Grade 5 this school year but his health already fails him, thus he needs to stop schooling for a while. Previously, a pedicab (bicycle with a side cart) brings Biloi back and forth to school and somebody else has to carry his school bag for him. His teachers are so proud of him as he is the most patient and helpful child in the class. Biloi dreams of becoming a very good architect someday so he could help rebuild their dilapidated church. He always reminds Nanay Dalyn to be patient with his illness as he still wants to accomplish many things to help people. Together with Nanay Dalyn, he lifts up this dream through his nightly prayer of the Holy Rosary. He doesn't want to be a burden to his parents and siblings as he performs minimal tasks at home, like simply watching over his toddler sister. It breaks my heart that a boy like him who suffers from a heart ailment has indeed a golden heart to share to loved ones and friends.
Let us not deny Biloi a piece of our hearts. Any amount of money to save the life of this boy will truly be appreciated. A prayer brigade is most welcome as we continue to hope for miracles. As somebody said, miracles is not the suspension of a natural law, it is, over and above, the operationalization of a divine law.
What is a $100 worth to most of us? It could mean a a brand new bag, a sumptous lunch, new accessories, or just our necessary routinary expenses like to pay our bills. Nothing that threatens our life if for just one time we forego meeting this expenses but instead help a boy reach his dreams and fulfill a mission that he feels he needs to accomplish in his lifetime.
There's a story of a man who is going away but is so reluctant to leave his daughter whom he rejoice at, being in her maternal way, but at the same time is having a marital problem. He asked God to watch over his daughter and protect her from harm. With all his trust in the Lord, he also asked a friend to call and visit her daughter everytime he has a chance. That comforted and pacified him to proceed to his journey. He asked his friend why was that so, is it a manifestation that he didn't have enough trust in the Lord? His friend's answer was, "No, it's just how the Body of Christ works. God created man in His image so we may accomplish things jointly with him."
Let's rejoice with the thought that we are given an opportunity to build our place in Heaven through a charitable act like this as it came our way. Please have the heart to answer to this call of help for Biloi as he prays so hard for you to be an angel to him. And let's ask God's gift of courage for us to be able to ask friends and relatives who may be willing to help Biloi in his need right now.
You can send your gift of love to Biloi through the account number below. May God's Blessings continue to pour unto you a hundredfold as you build your place in heaven.
ROSALINDA B. DOLOT
SA Account No. 5-15564-775-7
Development Bank of the Philippines
Tacloban City Branch
Tacloban City, Philippines
Please send this message to people you know who have golden hearts and let's join efforts to help Biloi continue to be an inspiration to more people.
Thank you for your kindness which will surely be rewarded through divine providence. Please let us know any efforts /donations that you made through adnilasor965@yahoo.com, for us to humbly give due recognition and gratitude. Again, God Bless You.
Love and prayers,
Becky
I asked GOD for all things that I might enjoy LIFE, He gave me life that I might enjoy all THINGS."
beckyrdorado
Thursday, December 3, 2009
LETTERS TO DR. JOVEN R. CUANANG, Medical Director of St. Luke's Medical Center
My whole family owe a lifetime gratitude to all those kind-hearted people who helped us in terms of financial, moral and spiritual support as we journey Roi's struggle against his heart condition (CHD) since he was 4 months old. Among them were Dr. Willie and Liza Ong, founder of the Movement of Idealistic and Nationalistic Doctors (MIND). It was Dr. Willie who suggested me to write a letter to Dr. Cuanang, the Medical Director of St. Luke's Medical Center to facilitate the case presentation of my son. He told me to name drop him since they were good friends.
While our waiting ended with a negative result, yet I was so thankful for Dr. Cuanang's kindness for his immediate action on my request.
Below is the full text of my letter-request and thank you letter.
April 15, 2008
DR. JOVENCIO R. CUANANG
Medical Director
St. Luke's Medical Center
Quezon City
Dear Dr. Cuanang.
Warmest greetings to you!
Sir, I just hope and pray that you can share a little of your precious time to read this letter.
It was thru the kindness of Dr. Willie T. Ong, Adult Cardiologist at the Manila Doctor's Hospital and a writer/columnist in the Philippine Star, Pilipino Ngayon and PM (Pangmasa) as I knew him, who gave your name and avised me to seek your assistance. I haven't met him personally. I just sent and email to him requesting a favor to publish the Tula I composed out of love, pity and despair, hoping someone could help me turn the said tula into a song dedicated for the 11th birthday of my son last February 15, 2008 and to all children with congenital heart disease that remians untreated due to financial constraints. Through his kindness, the said Tula was published in the April 6th issue of the tabloid PM (copy attached).
As I searched your name in the web, I was hesitant at first to send you this letter knowing your present position in the society. I have that fear that you don't have extra time to attend to this letter. However, I don't want to miss this little opportunity for the sake of my son and taking into consideration the efforts and concern of Dr. Ong in trying his best to help my son.
Sir, this pertains to the pending case of my son at the St. Luke's Medical Center. We were so thankful and fortunate that we had qualified to avail the social/charity service given by the said hospital to needy patients like us last November 2007. On January 30, 2008, he underwent cardiac catheterization performed by Dr. Eduardo Manrique, Pedia-Cardio Consultant, Dr. Euniel A. Solinap, Fellow, Pedia Cardiologist and Dra. Elizabeth Etoralde, Resident Physician, among others and was diagnosed to have CHD, severe pulmonary valve stenosis, ASD, MAPCAs and right ventricular failure. He was supposed to have his open heart surgery last February 2008, however, during his check up on February 8, 2008, Dr. Edison T. Ty, Pedia-Cardio Consultant who performed his 2D echo did not approve the said open heart surgery. Instead, he instructed Dr. Solinap to refer again to the service conference of pedia-cardio consultants and surgeons the result of the cardiac catheterization for final resolution and/or action - whether or not my son could still undergo open heart surgery. We reported for his regular check ups last March 4 and 25, 2008 hoping that his case had already been presented to the service conference. However, we were informed that due to the number of patients under this program, we really ahvwe to wait. Dr. Solinap and Dra. Grace C. Paguia, however, assured us that we shall be informed accordingly regarding the result once my son's case be presented to the service conference.
Sir, I hope you would understand my situation. We are now back to our home at Brgy. Cantariwis, Tolosa, Leyte since my sister in law whom we temporarily reside at Villa EspaƱa II, Tatalon, Quezon City had already transferred to Montalban, Rizal. We could no longer afford to stay in Manila and wait for the indefinite result of the service conference considering that we had already exhausted all our meager financial support. The only resources we have now intended for the operation of my son is the financial assistance in the amount of P80,000.00 pending at the PCSO Central Office subject to submission of the cost estimate for the said operation.
Sir, my son has no longer scheduled check up since his case has yet to be presented to the service conference. Likewise, Dr. Solinap is no longer with St. Luke's Medical Center effective April 1, 2008. As I experienced and based on existing policy of this program, every month the pedia cardio consultant and resident physician changes except for Dr. Euniel Solinap. While he informed me that he will try to discuss with Dr. Manrique regarding my son's case since he is no longer connected with the said hospital, I do believe that you are the right and best person who can assis us regarding my son's case. While it is really my son's wish to undergo the said procedure for he wants to continue his studies and live a normal life, I would however, trust the opinion and decision based on the result of the service conference whether my son could still undergo open heart surgery or not for I an confident that St. Luke's is one of the country's best hospital with the best doctors.
I knew my son is only among the hundreds or even thousands of children in our country suffering from heart ailment that remains untreated due to financial constraints. I really pity him for he has suffered since he was 4 months old. I am so thankful that through God's grace and mercy, he is surviving until now even without medication since his heart ailment has no prescribed medication, only surgical operation to correct the defects. However, as a loving mother I would be happier to see him properly treated and cured.
Sir, I do apologize for disturbing you. But I am fervently praying and hoping that through your kindness, presentation of my son's case to the service conference could be facilitated and miracles might happen.
Thank you and God bless you!
Very truly yours,
ROSALINDA B. DOLOT
Mother
THANK YOU LETTER:
May 19, 2008
DR. JOVEN R. CUANANG
Medical Director
St. Lukes Medical Center
Quezon City
Dear Dr. Cuanang,
My warmest greetings to you!
Sir, I wish to express my heartfelt gratitude for your favorable action on my request. Had not because of your intercession, perhaps until now we are still hoping for something that will never happen.
Dra. Tobias contacted me and requested if I can come to St. Luke’s so that the consultants could fully explain the result of the service conference regarding my son’s case. However, since I don’t really have money for my transportation expenses, I decided to request if I could talk to them through the phone. Fortunately, Dr. Jose Jonas del Rosario, contacted me through the phone. I called him and he was so kind enough to fully explain the result and final decision of the group. That definitely, open heart surgery is no longer possible for my son for it will only mean losing him. Instead, they are suggesting to repeat the cardiac catheterization, but this time a balloon shall be inserted in his pulmonary valve to lessen his cyanosis. Sir, much as we wanted this procedure, I was just honest enough to tell Dr. del Rosario that we could no longer afford to pay for the balloon. Last November 2007, we still have the money to shoulder the cost of the said balloon. During his cardiac catheterization last January 30, 2008, Dr. Solinap prepared a balloon (re-gas only) intended to be used but unfortunately it was not used by Dr. Manrique. All our meager financial resources were already exhausted for our 6 months stay in Manila. While we have financial assistance of P80,000.00 from PCSO, however, I doubt if it can be used to pay for the balloon.
Sir, as a mother, it is so painful to hear the final decision of the group. However, as I said in my letter to you, I would trust their opinion and final decision. Now I realized how blessed my son for he keeps surviving through God’s grace without medication. I do regret and blame ourselves that being financially hard up we were not able to give him the early treatment needed for his illness. Nevertheless, we did try our best even if it was already late. I know, my son will surely understand our situation.
I believed that what we’ve gone through.......the spending, waiting and hoping, were part of God’s plan for my son. Perhaps, it’s time to give up and just give our full trust to God for I believed HE has better plans for my son.
Sir, despite what happened, I still owe you a lifetime gratitude for your kindness in facilitating the presentation of my son’s case. My son and our whole family will always remember that a renowned doctor and businessman have the time and a big heart to accommodate a request of a charity patient. While I know that perhaps, you already have everything in life, I still pray for more God’s blessings to you since I believed that you can help lots of people in terms of job opportunity.
Sir, I am attaching a copy of Dr. Willie Ong’s email to me thanking you for your kind assistance.
Very truly yours,
ROSALINDA B. DOLOT
Mother of Roi
MESSAGE OF DR. WILLIE ONG
Re: Letter to Dr. Joven Cuanang
Wednesday, 7 May, 2008 1:28 PM
From:
This sender is DomainKeys verified
"Willie Ong"
View contact details
To:
"adnilasor965@yahoo.com"
Hi Linda,
Got your letter and notes.
Please write a nice and heartfelt "thank you" letter to Dr. Joven Cuanang in advance.
- Write him na sabi ko "Dr. Cuanang is so kind and helpful. Very few people with his stature will still attend to the needs of poor patients."
- Tell him that "no matter what happens with the condition of your son, you will still be grateful to Dr. Cuanang for his sincere help."
- Tell him "you'll pray for more for his success."
Good luck and let's wait for the conference for your son.
Update me on what happens. Don't worry, we'll be with you all the way.
Hope to see you and your son one day...
Take care,
Willie and Liza
While our waiting ended with a negative result, yet I was so thankful for Dr. Cuanang's kindness for his immediate action on my request.
Below is the full text of my letter-request and thank you letter.
April 15, 2008
DR. JOVENCIO R. CUANANG
Medical Director
St. Luke's Medical Center
Quezon City
Dear Dr. Cuanang.
Warmest greetings to you!
Sir, I just hope and pray that you can share a little of your precious time to read this letter.
It was thru the kindness of Dr. Willie T. Ong, Adult Cardiologist at the Manila Doctor's Hospital and a writer/columnist in the Philippine Star, Pilipino Ngayon and PM (Pangmasa) as I knew him, who gave your name and avised me to seek your assistance. I haven't met him personally. I just sent and email to him requesting a favor to publish the Tula I composed out of love, pity and despair, hoping someone could help me turn the said tula into a song dedicated for the 11th birthday of my son last February 15, 2008 and to all children with congenital heart disease that remians untreated due to financial constraints. Through his kindness, the said Tula was published in the April 6th issue of the tabloid PM (copy attached).
As I searched your name in the web, I was hesitant at first to send you this letter knowing your present position in the society. I have that fear that you don't have extra time to attend to this letter. However, I don't want to miss this little opportunity for the sake of my son and taking into consideration the efforts and concern of Dr. Ong in trying his best to help my son.
Sir, this pertains to the pending case of my son at the St. Luke's Medical Center. We were so thankful and fortunate that we had qualified to avail the social/charity service given by the said hospital to needy patients like us last November 2007. On January 30, 2008, he underwent cardiac catheterization performed by Dr. Eduardo Manrique, Pedia-Cardio Consultant, Dr. Euniel A. Solinap, Fellow, Pedia Cardiologist and Dra. Elizabeth Etoralde, Resident Physician, among others and was diagnosed to have CHD, severe pulmonary valve stenosis, ASD, MAPCAs and right ventricular failure. He was supposed to have his open heart surgery last February 2008, however, during his check up on February 8, 2008, Dr. Edison T. Ty, Pedia-Cardio Consultant who performed his 2D echo did not approve the said open heart surgery. Instead, he instructed Dr. Solinap to refer again to the service conference of pedia-cardio consultants and surgeons the result of the cardiac catheterization for final resolution and/or action - whether or not my son could still undergo open heart surgery. We reported for his regular check ups last March 4 and 25, 2008 hoping that his case had already been presented to the service conference. However, we were informed that due to the number of patients under this program, we really ahvwe to wait. Dr. Solinap and Dra. Grace C. Paguia, however, assured us that we shall be informed accordingly regarding the result once my son's case be presented to the service conference.
Sir, I hope you would understand my situation. We are now back to our home at Brgy. Cantariwis, Tolosa, Leyte since my sister in law whom we temporarily reside at Villa EspaƱa II, Tatalon, Quezon City had already transferred to Montalban, Rizal. We could no longer afford to stay in Manila and wait for the indefinite result of the service conference considering that we had already exhausted all our meager financial support. The only resources we have now intended for the operation of my son is the financial assistance in the amount of P80,000.00 pending at the PCSO Central Office subject to submission of the cost estimate for the said operation.
Sir, my son has no longer scheduled check up since his case has yet to be presented to the service conference. Likewise, Dr. Solinap is no longer with St. Luke's Medical Center effective April 1, 2008. As I experienced and based on existing policy of this program, every month the pedia cardio consultant and resident physician changes except for Dr. Euniel Solinap. While he informed me that he will try to discuss with Dr. Manrique regarding my son's case since he is no longer connected with the said hospital, I do believe that you are the right and best person who can assis us regarding my son's case. While it is really my son's wish to undergo the said procedure for he wants to continue his studies and live a normal life, I would however, trust the opinion and decision based on the result of the service conference whether my son could still undergo open heart surgery or not for I an confident that St. Luke's is one of the country's best hospital with the best doctors.
I knew my son is only among the hundreds or even thousands of children in our country suffering from heart ailment that remains untreated due to financial constraints. I really pity him for he has suffered since he was 4 months old. I am so thankful that through God's grace and mercy, he is surviving until now even without medication since his heart ailment has no prescribed medication, only surgical operation to correct the defects. However, as a loving mother I would be happier to see him properly treated and cured.
Sir, I do apologize for disturbing you. But I am fervently praying and hoping that through your kindness, presentation of my son's case to the service conference could be facilitated and miracles might happen.
Thank you and God bless you!
Very truly yours,
ROSALINDA B. DOLOT
Mother
THANK YOU LETTER:
May 19, 2008
DR. JOVEN R. CUANANG
Medical Director
St. Lukes Medical Center
Quezon City
Dear Dr. Cuanang,
My warmest greetings to you!
Sir, I wish to express my heartfelt gratitude for your favorable action on my request. Had not because of your intercession, perhaps until now we are still hoping for something that will never happen.
Dra. Tobias contacted me and requested if I can come to St. Luke’s so that the consultants could fully explain the result of the service conference regarding my son’s case. However, since I don’t really have money for my transportation expenses, I decided to request if I could talk to them through the phone. Fortunately, Dr. Jose Jonas del Rosario, contacted me through the phone. I called him and he was so kind enough to fully explain the result and final decision of the group. That definitely, open heart surgery is no longer possible for my son for it will only mean losing him. Instead, they are suggesting to repeat the cardiac catheterization, but this time a balloon shall be inserted in his pulmonary valve to lessen his cyanosis. Sir, much as we wanted this procedure, I was just honest enough to tell Dr. del Rosario that we could no longer afford to pay for the balloon. Last November 2007, we still have the money to shoulder the cost of the said balloon. During his cardiac catheterization last January 30, 2008, Dr. Solinap prepared a balloon (re-gas only) intended to be used but unfortunately it was not used by Dr. Manrique. All our meager financial resources were already exhausted for our 6 months stay in Manila. While we have financial assistance of P80,000.00 from PCSO, however, I doubt if it can be used to pay for the balloon.
Sir, as a mother, it is so painful to hear the final decision of the group. However, as I said in my letter to you, I would trust their opinion and final decision. Now I realized how blessed my son for he keeps surviving through God’s grace without medication. I do regret and blame ourselves that being financially hard up we were not able to give him the early treatment needed for his illness. Nevertheless, we did try our best even if it was already late. I know, my son will surely understand our situation.
I believed that what we’ve gone through.......the spending, waiting and hoping, were part of God’s plan for my son. Perhaps, it’s time to give up and just give our full trust to God for I believed HE has better plans for my son.
Sir, despite what happened, I still owe you a lifetime gratitude for your kindness in facilitating the presentation of my son’s case. My son and our whole family will always remember that a renowned doctor and businessman have the time and a big heart to accommodate a request of a charity patient. While I know that perhaps, you already have everything in life, I still pray for more God’s blessings to you since I believed that you can help lots of people in terms of job opportunity.
Sir, I am attaching a copy of Dr. Willie Ong’s email to me thanking you for your kind assistance.
Very truly yours,
ROSALINDA B. DOLOT
Mother of Roi
MESSAGE OF DR. WILLIE ONG
Re: Letter to Dr. Joven Cuanang
Wednesday, 7 May, 2008 1:28 PM
From:
This sender is DomainKeys verified
"Willie Ong"
View contact details
To:
"adnilasor965@yahoo.com"
Hi Linda,
Got your letter and notes.
Please write a nice and heartfelt "thank you" letter to Dr. Joven Cuanang in advance.
- Write him na sabi ko "Dr. Cuanang is so kind and helpful. Very few people with his stature will still attend to the needs of poor patients."
- Tell him that "no matter what happens with the condition of your son, you will still be grateful to Dr. Cuanang for his sincere help."
- Tell him "you'll pray for more for his success."
Good luck and let's wait for the conference for your son.
Update me on what happens. Don't worry, we'll be with you all the way.
Hope to see you and your son one day...
Take care,
Willie and Liza
Subscribe to:
Posts (Atom)