This blog is intended for my son, Roi or Biloi as fondly called by family and friends. "MY HEART'S JOURNEY" will keep track of his happiness and sufferings as he continue to survive despite denial of an open heart surgery, the only way to correct his heart defect due to doctor's fear of just losing him caused by his critical heart condition particularly his RV failure.
Thursday, December 2, 2010
Friday, November 26, 2010
Biloi's High School Life
With God's continuing grace, I enrolled Roi as 1st year HS at St. Michael
Development Center (SMDC), Tolosa, Leyte. This is the only catholic/private school in our town where his brother, Rouen graduated high school last March 2008. Likewise, his sister, Roe is currently enrolled as 4th year HS. That's the reason why i enrolled him in this school and the accomodation of the Principal and Sr. Joe to ensure that he is well-taken cared of by his sister.
Last June 7 was his first day in school. I accompanied him and informed Sir Jomar, his class adviser regarding his heart condition and requested that my son be exempted from attending the flag ceremony and other school activities that would aggravate his condition. I only requested his classmates to understand his condition telling them that he was already denied and open-heart surgery and anytime he would leave us. I was then assured by Sir Jomar and I was so thankful for such accomodation.
However, when I went home from work, I was worried to see him so huggard and complaining severe chest pain. I asked her sister what happened and they told me that his 2 teachers were not informed regarding his condition. They we're required to go down to the library to do some research and because he was new in that school he obeyed without telling his condition.
With what happened, he pleaded to transfer to Tolosa NHS, a government school located at Malbog, Tolosa, Leyte. According to him, almost all his classmates in Grade VI are studying there.
Sir Gaganao, the Principal of Tolosa NHS knew my son's condition and assured me that they will look upon him.
I prepared a letter and personally requested the School Head of SMDC regarding the transfer of my son. With their consent, Roi reported the following week to his new school.
He went to school with Mano Bening driving his motorcycle or pedicab. He ate lunch at school and fetched in the afternoon. He can't afford to stay in the classroom without an electric fan, so I have to provide his own stand fan. I also tried my best to donate one (1) ceiling fan for their classroom.
He really enjoyed in this school for he has many friends who understand his condition. Likewise, the teachers are so kind enough to give him considerations.
I knew how he wish to live longer and continue his studies. During my 45th bday and new year's eve, I have wished and prayed that God give him a longer life even at the expense of deducting years from my life.
Development Center (SMDC), Tolosa, Leyte. This is the only catholic/private school in our town where his brother, Rouen graduated high school last March 2008. Likewise, his sister, Roe is currently enrolled as 4th year HS. That's the reason why i enrolled him in this school and the accomodation of the Principal and Sr. Joe to ensure that he is well-taken cared of by his sister.
Last June 7 was his first day in school. I accompanied him and informed Sir Jomar, his class adviser regarding his heart condition and requested that my son be exempted from attending the flag ceremony and other school activities that would aggravate his condition. I only requested his classmates to understand his condition telling them that he was already denied and open-heart surgery and anytime he would leave us. I was then assured by Sir Jomar and I was so thankful for such accomodation.
However, when I went home from work, I was worried to see him so huggard and complaining severe chest pain. I asked her sister what happened and they told me that his 2 teachers were not informed regarding his condition. They we're required to go down to the library to do some research and because he was new in that school he obeyed without telling his condition.
With what happened, he pleaded to transfer to Tolosa NHS, a government school located at Malbog, Tolosa, Leyte. According to him, almost all his classmates in Grade VI are studying there.
Sir Gaganao, the Principal of Tolosa NHS knew my son's condition and assured me that they will look upon him.
I prepared a letter and personally requested the School Head of SMDC regarding the transfer of my son. With their consent, Roi reported the following week to his new school.
He went to school with Mano Bening driving his motorcycle or pedicab. He ate lunch at school and fetched in the afternoon. He can't afford to stay in the classroom without an electric fan, so I have to provide his own stand fan. I also tried my best to donate one (1) ceiling fan for their classroom.
He really enjoyed in this school for he has many friends who understand his condition. Likewise, the teachers are so kind enough to give him considerations.
I knew how he wish to live longer and continue his studies. During my 45th bday and new year's eve, I have wished and prayed that God give him a longer life even at the expense of deducting years from my life.
Friday, July 2, 2010
Tuesday, May 11, 2010
Wednesday, April 28, 2010
Monday, February 1, 2010
Biloi's drawings
Thursday, January 28, 2010
Biloi's 2009 Christmas Celebration with episode of hemoptysis
I really thought 2009 would go without a single episode of Biloi's hemoptysis (coughing of blood). My son's happiness of celebrating christmas with his grandparents(his father's parents with Aunt Marcia)and with his classmates and friends was again interrupted when he got hemoptysis last December 26 at around 6:00 pm. With my immunity of his illness, i was no longer panicking even if blood is running out of his nose. I was already firm with my decision of no longer admitting him in the hospital despite Dr. Solinap's advise. Precisely because we don't have money to pay the hospital bills. We have no more loan windows to open and our local hospitals, both private and government had no pedia-cardio consultant. Besides, I already knew my son's condition having been denied of an open heart surgery.
The only medication I could give him was hemostant 500mg 3 x a day, several kinds of blessed water, boiled water with makahiya plants and boiled bark of a red tree. But most of all, I believed God still hears our family's and friends prayers to extend my son's life.
His hemoptysis stopped last December 31, in time for the new year celebration. I thanked God and had only one wish for the new year..."that may God still extend my son's life even at the expense of deducting several years of my life just for him to live longer". But as I learned to believe, God has unique plans for everyone of us and I have no right to question Him.
Biloi has to extend his vacation until January 8, 2010. On the 11th day, he reported back to school and took his 3rd grading exams. However, last Jan. 20, while I was still on my way home from work, his sister sent message informing me that again, Biloi is coughing blood. I was somewhat worried because it seems that his condition is really worsening. But again, I have to trust God and His will.
Fortunately, his hemoptysis is just mild as compared to his previous episode.
Today, January 29 I left home with Biloi still sleeping. His father is off duty and could attend to him. Hopefully, he could already go to school on Monday, Feb. 1. I wish God will give him a great 13th birthday gift on February 15, 2010.
As a mother, I felt the pain of my son's illness...more on emotional pain because I know his condition and I don't know how long he could survive. But still I have to keep on pretending that I am strong to give him enough strength.
I wish to extend my gratitude to my family, for their prayers and moral support. To Dr. Euniel Solinap, the fellow, pedia-cardio who handled my son's case at the St. Luke's Medical Center, for always replying to my text messages whenever I need his medical advise and for his prayers and concern, to Dr. Willie and Liza Ong, to Dra. Wisco, to Ma'am Alim, for her never ending moral support and prayers for Biloi, to Unang, my ever-hardworking househelper who also serves as Biloi's caregiver, to his teachers, classmates and friends, for their kindness, concern and understanding and to all those friends and relatives who are continuously praying for him.
"Life can never be free of pain but God will always give you means to endure and survive. In the rush of events, you will see that He's holding your hand at every moment."
Subscribe to:
Posts (Atom)